WORDS WRITTEN BY BLINKINGS: THE “UPSETTING POETRY” OF ROBERTO FABBRINI, AFFECTED BY ALS

 The incredible story of a poet and theater director who is living together with the Amyotrophic Lateral Sclerosis.

 

Words that come from blinkings. Words that take life and form from the soul’s deepest places. Words that flow from pain and from days, months and years marked by a terrible disease, the ALS, Amyotrophic Lateral Sclerosis. And this three letters word ironically and provocatively stands on the cover of a recent book by Roberto Fabbrini, edited by non-profit organization Osa and published by Fondazione Alberto Colonnetti. Its title is “Cantata in Sla Maggiore” (“Cantata in Major ALS”).

The book also collects the previous works that Roberto Fabbrini had published since 2006/2007: “Le ombre lunghe della sera” (“The evening’s long shadows”), “Controcanto” and “Il respiro degli angeli” (“The breath of the angels”) . The 256 pages tell – in the harsh, cruel, atrocious and vehement poetry language – the human journey of Roberto Fabbrini. Born and living in Abbadia San Salvatore (Siena, Italy), writer and theater director, lover of life and art, since 2004 Roberto is living together with ALS, a disease that attacks and destroys the motor neurons which determine the muscles movement. The book follows the same progressive “way” of Roberto, who at the beginning was still able to compose on the laptop keyboard, moving hands and fingers. Then, the progression of disability, up to total paralysis, pushes Roberto to communicate only with his eyes: special pc sensors “translate” blinkings in written words.

The eyes are the only body part that is resistant to paralysis. And the eyes become the filter, the special screen, from which Roberto’s life passes and flowes. Roberto is spectator and protagonist at the same time. A book, this one, that displaces us. It catches us off-balance. It throws us in the row of those thoughts inevitably ending in silence. Faced with searing poetry of Roberto Fabbrini – rooted in the devastation of a disease that takes away everything but the awareness and lucidity to be – there’s nothing to say, there is nothing to comment, there is nothing to whisper.

We only need the silence. The real, dark, deep, mysterious and deafening silence. The true silence, which is also expressed through the wonderful photos accompanying the poems; the images were taken by my fellow photographer Andrea Fabbrini (he’s Roberto son).

It’s only in the silence that we can hear Roberto Fabbrini’s cry. A chilling, hard, upsetting and poignant cry, which echoes from page to page. A cry that creates pain. A suffering voice that creates a “controcanto”. These are the thoughts that the great Italian author Andrea Camilleri wrote introducing “Controcanto” chapter: “I was really striked by the term “contro” (it means “against”, in Italian). In Roberto Fabbrini condition, being “against” could easily and perhaps naively be interpreted like to be “against” his illness, his misfortune, as poet Leopardi says. But the amazing thing it is that – thanks to this “against” – Roberto lyrically got rid of prisons of his body and he was able to draw, from this experience, a positive message for everyone. “

It’s true. Though he’s imprisoned in his ALS disease – relentless and inexorable disease – Roberto Fabbrini screams his humanity as a free man. A scream without a voice. A scream that has the lightness of an eyelid beat. A scream that leaves us stunned and, for this, even more conscious.

Roberto Alborghetti

“CORRIERE DI SIENA” newspaper has published (Decembre 11, 2011) ROBERTO ALBORGHETTI’S article dedicated to ROBERTO FABBRINI ‘s POETRY

IL CORRIERE DI SIENA (11 dicembre) ha pubblicato l’articolo di Roberto Alborghetti dedicato a Roberto Fabbrini

PAROLE SCRITTE CON LE PALPEBRE: LA SCONVOLGENTE POESIA DI ROBERTO FABBRINI, PARALIZZATO DALLA SLA

Parole che nascono da un battito di palpebre. Parole che prendono vita e forma nei mendri più profondi dell’anima. Parole che sgorgano dal dolore, dai giorni, dai mesi e dagli anni di una malattia, la SLA, sclerosi laterale amiotrofica. Ed è proprio alla SLA che queste parole si collegano, fin dal titolo – “Cantata in SLA Maggiore”– che campeggia ironicamente e serenamente provocatorio, sulla copertina di un recente volume di Roberto Fabbrini, curato da Osa Onlus ed edito dalla Fondazione Alberto Colonnetti. Un libro che raccoglie anche i precedenti volumi che Roberto Fabbrini aveva pubblicato a partire dal 2006/2007: “Le ombre lunghe della sera”, “Controcanto”, “Il respiro degli angeli”.

Le 256 pagine raccontano, con il linguaggio della poesia – cruda, crudele, atroce e veemente – l’itinerario umano di Roberto Fabbrini. Originario e residente ad Abbadia San Salvatore (Siena), scrittore e regista teatrale, innamorato della vita e dell’arte, Roberto dal 2004 convive con la SLA, malattia che aggredisce e distrugge i motoneuroni che determinano il movimento dei nostri muscoli. Il volume segue progressivamente lo stesso “cammino” di Roberto, che all’inizio riesce ancora a comporre sulla tastiera del computer, muovendo mani e dita. Poi, la progressione dell’infermità, fino alla totale paralisi, spinge Roberto a comunicare solo con lo sguardo, percepito dai particolari sensori di un pc che “traducono” in parole scritte i battiti delle sue palpebre. Gli occhi sono l’unica parte del corpo che resiste alla paralisi. E gli occhi diventano il filtro, lo schermo speciale, da cui passa e transita la vita di Roberto, spettatore e protagonista allo stesso tempo.

Un libro, questo, che spiazza, che prende in contropiede, che scaraventa nel girone di quei pensieri che inevitabilmente si concludono nel silenzio. Di fronte alla lancinante poesia di Roberto Fabbrini – radicata nella devastazione di una malattia che toglie tutto, ma non la consapevolezza e la lucidità di essere – non c’è nulla da dire, non c’è nulla da commentare, non c’è nulla da sussurrare.

Serve solo il silenzio, quello vero, cupo, profondo, misterioso e assordante, come è solo il vero silenzio: lo esprimono anche le stupende fotografie che accompagnano le composizioni poetiche, immagini fotografiche scattate dall’amico Andrea Fabbrini, figlio di Roberto. Ed è solo nel silenzio che possiamo udire il grido di Roberto Fabbrini: risuona di pagina in pagina, agghiacciante, duro, sconvolgente e struggente. Un grido che è dolore e crea dolore. Un grido che si fa canto e controcanto, appunto. Giungono a proposito le parole dello scrittore Andrea Camilleri che nella prefazione a “Controcanto” scrive: “Questo “Controcanto” mi ha veramente colpito. Mi ha colpito proprio il “contro”. Nelle sue condizioni il contro potrebbe facilmente e forse ingenuamente essere interpretato come un “contro” verso la sua malattia, la sua sfortuna alla Leopardi, diciamo. Invece la cosa sorprendente è proprio che grazie a questo “contro” si è riuscito a sbarazzare liricamente delle sue prigioni corporee ed è riuscito a trarre da questa esperienza un messaggio positivo per tutti.”

E’ vero: pur imprigionato nella malattia – una malattia implacabile ed inesorabile – Roberto Fabbrini urla la sua umanità di uomo libero. Un urlo senza voce. Un urlo che ha la levità di un battito di palpebre. Un urlo che ci lascia attoniti e, proprio per questo, anche più coscienti.

Roberto Alborghetti

Se vuoi, puoi lasciare il tuo messaggio per Roberto Fabbrini.

 

 

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3 responses to “WORDS WRITTEN BY BLINKINGS: THE “UPSETTING POETRY” OF ROBERTO FABBRINI, AFFECTED BY ALS

  1. I have to shout to the world & all ALS sufferers that we can not depend on Modern Research to find the Cure.

    Modern Research has not diligently done the work of ” Leaving no stone unturned” – they have not
    exhausted all possibilities to reach the true Goal of finding the cure.
    Sure, they are continuing their search but they are going in the wrong direction & wasting valuable time.

    I need to prove that there is an avenue of Research which has shown GREAT promise it needs one more step
    to reach the cure and yet No research groups has taken this step because of a “Technicality” – their stubbornness
    into going beyond this route despite the clues or evidence points that this is the direction where the cure is.

    But We as a Research Agency has gone that Route.

    Below is the full Explanation:

    Many Amyotropic Lateral Sclerosis folks are already aware of a treatment for ALS that is available Over-the-Counter.
    This is Sphingolin capsules -(myelin protein) available from Food supplement stores
    and the Internet. When you read the indications you’ll find it is medicine

    for ALS and Multiple Sclerosis too.

    This product can be found at
    http://americasnutrition.com/sphingolin

    The mechanism of This kind of TREATMENT is Called Oral Tolerance- a mechanism
    researched by Modern Medical Researchers.

    Oral Tolerance (O.T.) is the most successful way of treating Amyotropic Lateral Sclerosis & various
    autoimmune diseases.

    View this link to understand better.
    http://elaine-moore.suite101.com/oral-tolerance-therapy-a8796

    And the most important part is O.T. is successful in – animal trials of autoimmune diseases.

    See Success in Animals trials below:

    http://webcache.googleusercontent.com/search?q=cache:kRjJz6A7DccJ:www.discoverymedicine.com/Ling-Shao/2009/07/12/treatment-of-disease-through-oral-tolerance/+oral+tolerance+animal+successfully&cd=4&hl=en&ct=clnk&gl=ca&source=www.google.ca

    However, it has not been successful in human trials.

    But if all of the factors in the animal trials were duplicated in human trials then
    we will have success too.

    The reason animal trials were positive is because in most cases the animals were young – their immune system were producing good amounts of the missing factor – CD80/CD86. The suppressor T cells – our attention should be on this cell because it is responsible for lowering antibodies (immunoglobin G) and can bring total healing.

    The research by Dr. Polly Matzinger explains this best :
    The T cell needs 2 factors or signals for full activation.
    1.) a peptide similar to myelin Basic protein – a tiny dose 1 mg. this primes or makes ready the T cell. But without the 2nd signal the T cell remains in anergy( no activity).
    2.) the Second signal – is CD80 or CD86 – either one is enough to make the T cell go thru the changes that makes it fully activated cell.

    Doctor Matzinger’s work is “The Danger Theory” in Immunology which is long explanation but the 2 signals described
    above are the important ones because they answer & complete what is needed in Oral Tolerance.
    It is the Second Signal where Modern medicine has not progressed further & failed.

    CD80 and CD86 are factors found in the blood.

    Many Blood Factors and their production are increased by Herbs;
    For EXAMPLE:
    1.) VEGF(Vascular endothelial Growth Factor) – expression increased by Chinese herb Angelica sinensis.

    2.) Interferon-G – expression induced by Astragalus membraneous root and some
    extracts from certain beans.

    3.) Tumor necrosis factor- a – production increased by Coptis herb

    4.) INterleukin-2 – expression increased by Goji berries.

    The important fact is CD80 And/or CD86 -the missing ingredient can be induced by Herbs.
    CD80 production is possible thru the use of plants &/or mushrooms.
    Examples:
    1.) Agaricus bisporus – can induce CD80 . Agaricus bisporus is the white Button mushroom or champignon mushroom found in most U.S. and Canadian supermarkets.
    see article http://www.ncbi.nlm.nih.gov/pubmed/18287364

    2.) Goji berry known as Lycium barbarum – juice and extracts induces CD80- available from most Food supplement stores & the internet
    See article http://www.ncbi.nlm.nih.gov/pubmed/19170138

    We have just proven that the answer to autoimmune diseases including ALS is Modern Medicine’s Oral Tolerance combined with herbs .
    All INFo here are True and you can search these thru the internet. Look up the words – Oral Tolerance, T suppressor cells, Dr. Polly Matzinger, T cells & Second signal, CD80 & CD86 – all of these can be verified & found in the internet and in medical journals – you’ll see they agree with what is written here.

    But Modern Med. research has a handicap.
    We have approached 2 Research companies/agency and offered that they partner
    with us because it would help in getting ourselves (who are unknown) better accepted by
    both the medical community & ALS patients worldwide.
    But we have been turned down.

    All Research agencies have partnered with Drug Companies whose policy is not to go into Herbs research. If they spend millions on herbs, herbs can not be patented so people will not get it from the Drug companies since they are available from stores & other sources.

    Lux Research – a division of Lux Health Resources has done the research & is successful in trials.

    For mild cases – 2 to 3 courses treatment
    Moderate – 4 – 5 courses treatment
    . Severe – 6 to 8 treatments.
    And each treatment takes only 21 days so that’s not long to cure
    .

    Contact us – Lux Research at
    himmerland2000@yahoo.ca

  2. Pingback: Volare « Pensieri e Diario

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